Rare diseases come in many forms, but they all share one common problem: healthcare providers often lack the expertise to diagnose and treat them effectively.
With so few patients affected by each condition, accessing specialized care is often difficult. So, how can we ensure these patients get the high-quality treatment they need?
The Nordic solution: Cross-border collaboration
Nordic Health Talks aims to explore how systematic collaboration between the Nordic countries can improve care for rare disease patients. By sharing health data, treatment protocols, and screening programs, the Nordic countries can set a new standard for managing rare diseases and improve outcomes for all patients.
We need to find better ways to share health data across the Nordic borders. A rare disease affects small populations and data sharing can be crucial in order to diagnose the diseases.
What can we learn from each other when it comes to implementing screening, for those diseases that benefit from early treatment in order to stop or slow down the development of an illness, in the national screening programs?
